today our prayers were answered. since mya was a few weeks old, she has had cafe au lait spots on her back and under her left arm. on their own, they are nothing, but they are one symptom of a disease called NF. this is a major disease--cysts form, learning disabilities, vision difficulties, etc. our pediatrician has never been very concerned as mya is doing well and there isn't anything that can be done at this point regardless if a diagnosis is made or not. she did recommend a referral to a pediatric dermatologist to get an initial check, so the monitoring process can begin. after a long six month wait, that appointment was today. dr. burnett was awesome. she was patient, answering each and every question, explaining Mya's birthmarks (which are considered 'segmented cafe au lait macule'), the connection to NF and one other potential disease (mccune albright syndrome). currently, mya shows no signs of either disease and is exhibiting normal growth and development. she basically ruled out both diseases. we will continue to monitor for changes and take her back for a check up in 2 years. if other cafe au laits appear, she will go back in 1 year. today we are optimistic, thankful and truly blessed that our prayers have been answered.
The Halloween festivities are in full swing here. We attended a "Fall Festival" at my school on Thursday evening and today we enjoyed a "fall festival" at the girls' school. We've managed to keep their costumes a secret until Wednesday when Claire spilled the beans. She was doing so well at keeping the secret, I almost thought she wasn't our child for awhile ;) Claire dressed as "Pinkalicious" and Mya was a cupcake. My Mom and Dad bought Claire the book, "Pinkalicious" for her first birthday. It has been an on-going hit with our girls. They both have the entire book memorized. It is such a cute book where this girl named "Pinkalicious" loves pink. She eats too many pink cupcakes and turns pink, which she is thinks is simply beautiful then red, which is less than favorable. She eats her vegetables to turn alleviate her pain. In the meantime, her little brother is envious and devours the last one, then turns pink too. It is a ...
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Love ya,
J
Lisa
She is so cute, she has hair. From here, it looks like there may be a red tint to it.
You have such adorable children...